Excited to announce the publication of the Springer volume Diagnoses Without Names: Challenges for Medical Care, Research, and Policy, ed. Michael D. Lockshin, Mary K. Crow, and Medha Barbhaiya. The book explores circumstances surrounding uncertain diagnoses, different stakeholder uses of diagnosis, and the importance of challenging prevailing norms to accept uncertainty as part of the diagnostic process.
My chapter, “Shame, Name, Give Up the Game? Three Approaches to Uncertainty,” builds on my experiences as a family member of a then-undiagnosed lupus patient and later as the head of a lupus patient support group chapter, as well as my later dissertation research on a diagnosis decision support tool (among other case studies in AI) that these experiences informed.